https://doi.org/10.4081/reumatismo.2024.1689

Disease disclosure in the workplace in people living with rheumatic diseases: an exploratory study

Early Access
Submitted: 3 December 2023
Accepted: 23 May 2024
Published: 1 October 2024
Rheumatic disease, invisible disability, chronic disease, disease disclosure, health disclosure
Abstract Views: 118
PDF: 49
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Authors

S.M.T. Ostuzzi
silviaostuzzi.alomar@gmail.com
https://orcid.org/0000-0001-9768-547X
ALOMAR ODV – Lombard Association for Rheumatic Diseases, Milan, Italy.
E.N. Aiello
Department of Neurology and Laboratory of Neuroscience, IRCCS Istituto Auxologico Italiano, Milan, Italy.
F. Ingegnoli
https://orcid.org/0000-0002-6727-1273
Clinical Rheumatology Unit, ASST Pini, Milan; Department of Clinical Sciences and Community Health, Research Center for Adult and Pediatric Rheumatic Diseases, Research Center for Environmental Health, University of Milan, Italy.
C. Pistarini
Department of Neurorehabilitation, Istituti Clinici Scientifici Maugeri IRCCS, Pavia, Italy.
B. Poletti
Department of Neurology and Laboratory of Neuroscience, IRCCS Istituto Auxologico Italiano, Milan; Department of Oncology and Hemato-Oncology, University of Milan, Italy.
V. Silani
https://orcid.org/0000-0002-7698-3854
Clinical Rheumatology Unit, ASST Pini, Milan; Department of Pathophysiology and Transplantation, “Dino Ferrari” Center”, University of Milan, Italy.
E. Fiabane
Psychology Unit, Istituti Clinici Scientifici Maugeri IRCCS, Pavia, Italy.

Objective. Rheumatic musculoskeletal diseases (RMDs) are the causes of frequent absence from work and loss of productivity. As (in)visible diseases, it is up to the individuals to decide if disclosing their diagnosis, with important repercussions also within the workplace. Still little is known about disease disclosure in the workplace (DD-W) in patients with RMDs. This study aimed to investigate socio-demographic, clinical, and psychological predictors of DD-W among working patients with RMDs.

Methods. A cross-sectional Italian national study captured DD-W in people with RMDs. An online survey was developed using ad-hoc questions and scientific questionnaires to explore demographics and work-related, clinical, and psychological factors. Stepwise logistic regressions were run to identify significant predictors of DD-W.

Results. A total of 250 working rheumatic patients completed the survey; 81.2% of the participants enacted DD-W. DD-W behaviors were predicted by perceived visibility of the RMD (p=0.008), work type (p=0.022), general DD behaviors (p<0.001), and perceived family support (p=0.023). Among RMD patients, psoriatic arthritis participants had higher probabilities of DD-W (p=0.02), whereas lower probabilities were detected in fibromyalgia patients (p=0.003). Lower disease duration corresponded in the sample to higher probabilities of DD-W (p=0.036).

Conclusions. The majority of RMD patients in this study enacted DD-W. DD-W was associated with medical, occupational, and psychological factors, supporting the multidimensionality of the process. Further research on the subject might help foster better DD-W decision-making processes for RMD patients while promoting intervention strategies in education, policy, and culture.

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How to Cite

Ostuzzi, S., Aiello, E., Ingegnoli, F., Pistarini, C., Poletti, B., Silani, V., & Fiabane, E. (2024). Disease disclosure in the workplace in people living with rheumatic diseases: an exploratory study. Reumatismo. https://doi.org/10.4081/reumatismo.2024.1689
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